Pushing Too Far

These last few weeks have been full-on in the Russell house. It is going to be a busy end to a big year. And the strain is beginning to show, especially with Gilbert. He has had an extraordinary year. Everyone who knows him knows how hard he has worked this year. We...

Demystifying Albinism: Seeing Red

One of the biggest and most enduring myths about albinism centres around the colour of the eyes. The stereotypical view is that people with albinism (PWA) have red or pink eyes. “Will he have red eyes?” I must admit that was the first question I asked our...

Gilbert’s Ninjago Party

If you are a regular reader (and if you aren’t, why in heavens aren’t you?) you would know that I have been preoccupied with Gilbert’s 9th birthday and planning for his Ninjago party. Well the party has been and gone and it ended up being pretty...
The Unexpected Conversation

The Unexpected Conversation

I love having conversations with the kids. They can be funny, serious, baffling, crazy and frustrating – often all at the same time. But they are always, always entertaining. The two older kids spent a day with their grandmother yesterday awaiting their return...