by Kirsty | Nov 11, 2016 | Albinism, Education, Special Needs, Vision
One of the things I love most about sharing our life as a special needs family is the opportunity to help others by sharing our experience and knowledge. I often get emails from parents of newly diagnosed kids seeking answers to common questions, especially about...
by Kirsty | Jun 23, 2016 | Albinism, Parents, Special Needs, Vision
As a first time parent I knew all about milestones. I didn’t know much else about parenting but after reading pregnancy and baby books for 9 months I was an expert on milestones. You know the ones – the first time your baby smiles, sleeps through the night,...
by Kirsty | Sep 1, 2015 | Albinism, Autism, Special Needs, Vision
As my son grows older (he’ll be 12 in March) we are grappling more and more with the challenge of developing his independence. For most 11 year olds, catching the bus home from school, walking around the corner to a friend’s house and having sleepovers are...
by Kirsty | Jun 5, 2015 | Albinism, Vision
June 13 is International Albinism Awareness Day. My son will be giving a series of talks to classes at his school next week in the lead up to the day. I’m so proud of him and his desire to share his knowledge with his peers. Although I suspect he’s more...
by Kirsty | Dec 13, 2013 | Education, Parents, Special Needs, Vision
If you had been following any of my social media accounts today you would have seen my proud pictures and posts about my boy receiving an award at his school’s presentation day. Anyway, for those who missed it Gilbert received a certificate and medal to...
by Kirsty | Jun 11, 2013 | Albinism, Vision
One of the biggest and most enduring myths about albinism centres around the colour of the eyes. The stereotypical view is that people with albinism (PWA) have red or pink eyes. “Will he have red eyes?” I must admit that was the first question I asked our...
