fbpx
Albinism in the News

Albinism in the News

I’m a rather proud parent at the moment (which is a massive understatement!). Gilbert has been busy raising awareness of albinism again and filed a rookie reporter report for Behind the News for International Albinism Awareness Day, June 13. I’m even more...
Being attacked for having a child with albinism

Being attacked for having a child with albinism

Since giving birth to my platinum-haired, blue-eyed son back in 2004, I’ve always been a proud supporter and advocate for albinism awareness. My beautiful boy as a baby in 2004 I started this blog to share my experiences in having a child with albinism and to...
Starting High School with Albinism

Starting High School with Albinism

I must confess, my fingernails are all gone and I’m rather apprehensive as we approach Gilbert’s first day of high school. I know we’ve done all we can to prepare him for the new start in front of him but I still don’t know it that’s...
Planning outings with kids with albinism

Planning outings with kids with albinism

One of the biggest concerns I had when we first learned Gilbert had albinism, was whether he’d ever be able to spend quality time outdoors. His skin was so pale and delicate. We were terrified if we took him outside, he’d get burnt and increase his already...