There are so many fantastic resources out there for special needs parents and I want to share some of my favourites with you here. I’ve scoured the internet and have come up with a range of special needs resources on the following topics:
- Autism Blogs
- Low Vision
- Special Needs Parenting
- Disability Advocacy
The inclusion of any site on this page does not represent a direct endorsement from myself. I also cannot vouch for all the content included on these sites as the internet is a fluid beast and information is changed and updated constantly.
However, these sites provide a great starting point for your own information gathering exercises and I’ve found a lot of help and information over the years from many of the sites listed.
Special Needs Resources
Are you new to albinism and looking for information and albinism resources?
I know how confused and uninformed I felt when we first received Gilbert’s diagnosis. I also remember how hard it was to find information at all, let alone information I could trust.
With a global prevalence of only 1 in 20,000, it’s probably no surprise that albinism is so little understood.
To help you, I’ve put together some links to resources I’ve come across over the years, including links to various pages, support groups and websites. Hopefully these links will help you find all you need to know about albinism.
Albinism Fellowship of Australia
National Organization for Albinism & Hypopigmentation
Albinism Fellowship UK & Ireland
World Albinism Alliance
Under the Same Sun
OHCHR – United Nations
Albinism Support Group
The Albinism Alliance Group (TAAG)
Albinism Fellowship of Australia
Websites & Blogs
Louise & Albinism
Parent of a Child with Albinism
The Will to See
A Few More Steps
Through Liam’s Eyes
Hey There April
Chronicles of a Crafty Blind Chick
Crafty Blind Chick
If you’re looking for ways to support your child’s learning at home, there are lots of websites with resources aimed particularly at special needs parents. From sites concentrating on all things homeschooling, to those addressing sensory issues with learning, through to websites focusing on social learning and those specialising in visual aids, there are great resources out there, most of which offer their expertise for little to no cost.
I’ve put together a list of websites which offer special needs families a variety of education resources. I cannot personally vouvh for the content of each and every site (because the internet is too hard to keep up with at the best of times) but they are a great start if you’re looking for more resources that cater to different learning needs.
If you are new to an autism diagnosis you no doubt have many, many questions. These resources have been collated to help answer some of those questions. The autism experts listed here either have autism themselves or have first hand experience with autism over many years. They really are the first port of call if you are looking for information.
The autism resources linked below cover books, printables, equipment and general information about autism and aspergers. These are sites with a wealth of information and expertise, with links to even more sites for your reference. The organisations listed under autism organisations comprise state and national bodies committed to increasing awareness, promoting acceptance and improving outcomes for all with autism across Australia.
Autism advocacy bodies work to help people with autism achieve fair and equitable access in the community. Many of these bodies are run by autistic people who understand first-hand the challenges faced by people with autism.If you are interested in finding out about our autism story and reading the posts I have written based on our own experience, please check out my autism page.
Autism Resources Australia
Resources at Hand
The Therapy Store
National Autism Resources
Awesome Autism Resources
Minds and Hearts
Caring 4 Our Kids
Sesame Street & Autism
Communicating with an autistic child
Autism and divorce
Visiting the dentist
Sleep and Autism
Autism Spectrum Australia (ASPECT)
Amaze (Autism Victoria)
Autism Asperger ACT
Autism Awareness Australia
Autism Partnership Australia
Autism Behavioural Intervention Association (ABIA)
Centre for Inclusive Schooling of Children with Autism (CISCA)
Australian Autism ADHD Foundation
Autistic Self Advocacy Network (ASAN)
Autistic Family Collective
Garry Burge – Asperger Syndrome & Autism Advocacy
Autism Aspergers Advocacy Australia
Autism Advisory & Support Service
If you are new to an autism diagnosis, you most likely feel lost, confused and very alone. However, you are not alone – there are many people out there sharing their own experiences living with autism through websites and blogs.
From the funny to the heartbreaking, autism blogs are as diverse as the autism spectrum itself.
The bloggers below all share their own stories in their own unique and individual ways. Whether you are looking for a bit of escapism, a much needed laugh or some rare understanding, you will more than likely find what you need from the list below.
Australian Autism Parenting Blogs
About a Bugg
Playing with Fireworks
Sand Has No Home
Our Autism Adventures
Autistic Children Blog
Magneto Bold Too
US Autism Parenting Blogs
Autism With a Side of Fries
Stuart Duncan – Autism From a Father’s Point of View
The Autism Dad
Every Star Is Different
This Outnumbered Mama
And Next Comes L
MOM – Not Otherwise Specialised
We Go With Him
UK Autism Parenting Blogs
Rainbows Are Too Beautiful
Love That Max
Living With Autism
Neurodiversity & Autistic Blogs
Michelle Sutton Writes
The Autistic Me
Emma’s Hope Book
Yes That Too
Thinking Person’s Guide to Autism
Low Vision Resources
We are no strangers to low vision assistance as we’ve received help for our son’s vision since he was 3 months old. Without early intervention he would not have come as far as he has and we would not have known how we should have been helping him.
It can be daunting to begin with but there are wonderful organisations out there with the expertise and the kindness to help you and your child. I know because we have been lucky enough to have been beneficiaries ourselves.
If you care for someone with low vision, here are a list of low vision organisations and resources to help you, help them.
Low Vision Organisations
Royal Institute for Deaf & Blind Children (RIDBC)
Guide Dogs Australia
Orientation & Mobility Association of Australasia (OMAA)
Royal Society for the Blind (RSB)
Vision Impairment Family Network
American Foundation for the Blind
Perkins School for the Blind
Texas School for the Blind & Visually Impaired
Low Vision Resources
Australian Braille Authority
Independent Living Centres Australia
UEB Online – Braille Training for Sighted Learners
Living Well with Low Vision
Resources for Low Vision Travellers
Special Needs Parenting Resources
Here are some posts that I’ve written for special needs parents – I will add more here as I write them.
Why Special Needs Parenting is a Lot Like Survivor
How to Survive School Holidays as a Special Needs Parent
9 Ways to Find Support as a Carer
Special Needs Parents: We All Need Support (Even You)
10 Things I Believe About Special Needs Parenting
Labels Don’t Define. They Enable.
Why I’m Not Interested in an Autism Cause or Cure
Confessions of a Special Needs Parent
The Stress of Autism Parenting
Occupational Therapy & Autism
Sleep Solutions for Special Needs Parents
Autism and Daily Life
Advice I Wish I’d Received as a Special Needs Parent
More Practical Advice for Special Needs Parents
Online Resources for Special Needs Parents
Special Needs Parenting & High School
5 Tips for Approaching IEP Meetings
5 Tips for Moving House with Special Needs Kids
5 Tips for Taking Kids on Holidays
Independence & the Special Needs Child
It’s Okay to Challenge Your Special Needs Child
Trying to Find Balance as a Special Needs Family
Special Needs Parents: It’s Okay to Admit Things Are Hard
My Son’s Sensory Lunchbox
Autism & Theme Parks
The Positives of Autism
The Emotions of Autism
Managing Back to School Anxiety
Challenging the ASD Child
Dual Diagnosis Dilemma
Autism and the Silly Season
The Real Face of Albinism
Demystifying Albinism: The Power of Popular Perception
Demystifying Albinism: Seeing Red
Demystifying Albinism: Shades of Pale
Demystifying Albinism: Real Life Rolemodels
Demystifying Albinism: Ongoing Persecution
The Road to Mainstream – Part 1
The Road to Mainstream – Part 2
The Road to Mainstream – Part 3
12 Autism Tips for Everyday Life
Please comment below or email me directly at email@example.com if you think a page or a blog should be added to this list – I’d love to discover more special needs resources.