Are you new to albinism and looking for information and albinism resources?
I know how confused and uninformed I felt when we first received Gilbert’s diagnosis. I also remember how hard it was to find information at all, let alone information I could trust.
With a global prevalence of only 1 in 20,000, it’s probably no surprise that albinism is so little understood.
To help you, I’ve put together some links to resources I’ve come across over the years, including links to various pages, support groups and websites. Hopefully these links will help you find all you need to know about albinism.
You can also check out my albinism page for more information plus links to my own posts on albinism, from the perspective of a parent.
Websites & Blogs
Louise & Albinism
Parent of a Child with Albinism
The Will to See
A Few More Steps
Through Liam’s Eyes
Hey There April
Chronicles of a Crafty Blind Chick
Crafty Blind Chick
If you still have any questions or are looking for more albinism resources, please contact me directly at firstname.lastname@example.org
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