Albinism Resources

Are you new to albinism and looking for information and albinism resources?
I know how confused and uninformed I felt when we first received Gilbert’s diagnosis. I also remember how hard it was to find information at all, let alone information I could trust.
With a global prevalence of only 1 in 20,000, it’s probably no surprise that albinism is so little understood.
To help you, I’ve put together some links to resources I’ve come across over the years, including links to various pages, support groups and websites. Hopefully these links will help you find all you need to know about albinism.
You can also check out my albinism page for more information plus links to my own posts on albinism, from the perspective of a parent.
albinism resources -

Support Organisations

Albinism Fellowship of Australia
National Organization for Albinism & Hypopigmentation
Albinism Fellowship UK & Ireland
World Albinism Alliance
Under the Same Sun
OHCHR – United Nations

Support Pages

Albinism Support Group
The Albinism Alliance Group (TAAG)
Albinism Community
Albinism Friends
Albinism Fellowship of Australia

Websites & Blogs

Positive Exposure
Louise & Albinism
Parent of a Child with Albinism
The Will to See
A Few More Steps
Through Liam’s Eyes
Hey There April
JD Dalton
Jennifer Nichols
Albinism Fellowship
Blonde Whimsy
Chronicles of a Crafty Blind Chick
Crafty Blind Chick
If you still have any questions or are looking for more albinism resources, please contact me directly at
Return to Special Needs Resources

Support is so important when you're a special needs parent


Subscribe to receive understanding, support and advice from a fellow special needs parent. It can be a lonely and overwhelming road but it's easier when you're not walking it alone. Let's work together to find the positives and help you and your family live a more empowered life.

You have Successfully Subscribed!